on the ice bucket challenge


my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS. 

this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.

this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.

after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.

these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.

so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.

i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”

please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.

my mom’s chapter:


p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.


12 minutes ago on August 22nd, 2014 | J | 33,850 notes
24 minutes ago on August 22nd, 2014 | J | 4,663 notes
Tagged as: #john barrowman 


BTS Season 4

I love these costumes and this cast!

43 minutes ago on August 22nd, 2014 | J | 123 notes
Tagged as: #downton abbey 


Doctor who countdown meme 
↳ 2 days till who: Favourite outfit in season 7
- Clara’s lovely dress in Journey to the Center of the TARDIS

45 minutes ago on August 22nd, 2014 | J | 523 notes

I didn’t drink coffee today! That’s two days in a row!

1 hour ago on August 21st, 2014 | J | 0 notes
10 hours ago on August 21st, 2014 | J | 111 notes
Tagged as: #books 

The point of the ALS Ice Bucket Challenge

the point of pouring a shit ton of ice water over yourself is because when one suffers from amyotrophic lateral sclerosis (ALS) one of the affects the disease has is a numbness throughout the body, as well as struggling to breathe, and both these are meant to temporarily happen when doused in freezing water. It’s to raise awareness of what ALS feels like and encourage donations towards research and cures.

10 hours ago on August 21st, 2014 | J | 86,235 notes


@staff loving the new update. having my screen split in half and seeing an enlarged version of a mobile theme is exactly what i wanted to happen when i click someone’s url. i’m glad it’s finally happened. for the next update i was thinking we could just shut peoples laptops off when they click a url. i have a lot more ideas like this just contact me at this inbox

10 hours ago on August 21st, 2014 | J | 75,357 notes
10 hours ago on August 21st, 2014 | J | 30,473 notes


Jayma Mays ALS Ice Bucket Challenge

Oh my god .. The best !

11 hours ago on August 21st, 2014 | J | 952 notes
Tagged as: #jayma mays #omg 


Harry Potter AU in which Remus Lupin doesn’t leave Hogwarts after Snape tells everyone he’s a werewolf

instead, he fucking stays where he belongs

and, as the howlers start coming, insults exploding at the teacher’s table every morning like clockwork, the students take notice. They see Lupin’s face, and he’s not even angry, he looks fucking resigned to it, like he deserves it.

So, the students take matters into their own hands. 

"You’re the best teacher EVER" is heard on a Monday morning, followed by a “We really like your classes” on Tuesday and “Thanks for being such a cool guy. AND FOR THE CHOCOLATES” on Wednesday.

by Friday, things have escalated to the point that you can’t  go ten minutes without a howler bursting and showering Lupin in compliments.

(It’s a whole month before the fateful “YOU HAVE A VERY CUTE ASS, 10/10 WOULD BANG! ” and the subsequent banning of all howlers for the teachers.

Snape has never looked more constipated in his life.)

11 hours ago on August 21st, 2014 | J | 18,656 notes
Tagged as: #hp 

I didn’t drink coffee today! \o/

23 hours ago on August 21st, 2014 | J | 1 note
Tagged as: #achievement 


ALS Challenge Osric Chau [х] || ALS Challenge Mark Sheppard [х] [х]

23 hours ago on August 21st, 2014 | J | 8,970 notes


Chris Colfer challenges many people for ALS, including Adam Lambert and Jane Lynch, plus he says he donated money as well as doing the challenge, and even used recycled water because of the drought. He thinks of everything!

23 hours ago on August 21st, 2014 | J | 356 notes
Tagged as: #chris colfer 
1 day ago on August 21st, 2014 | J | 115,869 notes
Anna - Finland - 22
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